Supporting Outcomes and Advancing Research in Dup15q syndrome
What is the purpose of the ABC-CT study?
The purpose of the SOAR study is to better capture the behavioral and clinical features of Dup15q syndrome, understand the way that behavioral measures change over a 1-year period, and to determine which measures are best to be used in future clinical trials.
What is involved?
Children will undergo direct developmental testing, and caregivers will complete interviews and surveys. Over the course of a 1-year period, there will be two in-person visits and one remote visit.
Who Can Participate?
Children ages 2-18 with Dup15q syndrome and their caregivers
